I have been battling Cushings Disease for many years. I had transphenodial surgery at the Mayo Clini-Rochester in April of 2008.
Recently my numbers were high again and I can feel that my Cushings is back. I just got done with the long testing process and am waiting to confirm a appointment for a bilateral adrenalectomy. If anyone has had a BLA I would appreciate an e mail. I would like to hear it all- the good, bad and the ugly. I would also like to know if this made your quality of life any better and tips and tricks for recovery. I am very scared. This decision is a lifetime change but one I am willing to take becuase of how miserable I feel now.
I have two children and a husband that although are VERY supportive still need their Mom/wife to be an active part of their lives. Thank you!
